Dementia Framework General Survey

Feedback updated 25 Feb 2019

We asked

We conducted two online surveys that ran from 21 May 2018 to 22 July 2018. One was a general survey and the other was aimed at care and support providers.

The survey asked questions to help us with our current review of the Dementia Framework West Sussex. The review was to help us identify whether we are achieving our outcomes and help us to plan our next steps to ensure people in West Sussex living with dementia and their families are supported to live well.

You said

Thank you to all of the people that completed the survey. We received 190 responses in total. 149 people completed the general survey. Of those 41% (61) were a family or friend carer for someone with dementia, 3% (6) people had dementia themselves. 41 responses were received for the survey aimed at care and support providers.

Some of the highlights were:

76% of you agreed that a ‘one stop shop’ for information and advice, where it was all located in one place, would make it easier to find information advice and information, whilst 63% agreed that more promotion of where to locate information would be beneficial.
72% of you felt that better communication between services would improve care and support.
51% of you would benefit from help in understanding how to manage a crisis.

You said you wanted more staff training on how to support people with learning disabilities who develop dementia and their families.
25% of carers did not get a break from their caring role.
- You said you wanted to see communities that were more accepting and understanding of the person living with dementia.
- You said you wanted to see an expansion of dementia friendly communities particularly in more isolated, rural communities.
Care and support providers offered a range of views on the unmet needs in West Sussex, including the following common themes
- Services and support for diverse communities.
- Accessible, affordable transport.
- Effective coordination of information and advice.
- Funding.
- A general lack of services to support carers in their difficult roles, including the provision of respite opportunities and easily accessible information and advice.

We did

We have collated the results from the surveys and will use them to inform the full review and refresh of the Dementia Framework.

The refreshed Dementia Framework will be launched in Spring 2020.

Overview

West Sussex County Council together with Crawley, Horsham and Mid Sussex and Coastal West Sussex Clinical Commissioning Groups are reviewing the five year health and social care commissioning strategy, the Dementia Framework 2014-19.

The review will identify whether we are achieving our outcomes and will also help us to plan the next steps to ensure that people in West Sussex living with dementia, and their families, are supported to live well.

To help us with the review we would like to hear your views. What you tell us will help us to shape and deliver support in the future.

Why we are consulting

The purpose of this survey is to:

- collect information about the care and support available to people affected by dementia

- identify gaps in the provision of services and support

- think about, and inform, how we might do things differently in the future.

Data protection/privacy notice

The information you provide will be used specifically to inform the County Council's and Clinical Commisioning Group's commissioning plans. The data will be stored securely and confidentially and anonymity is central to the work. West Sussex County Council owns all data in this instance.

The data will be used to help us carry out our statutory duties and day to day business in the public interest. We will process your data in accordance with the Data Protection Act, and any subsequent legislation, including the General Data Protection Regulations.

The information you provide will be kept securely for five years before being appropriately destroyed. West Sussex County Council is registered as Data Controller (Reg. No. Z6413427). For further details and information about our Data Controller, please see www.westsussex.gov.uk/privacy-policy.

Please be assured no information that personally identifies you will recorded in any report or other documents. You will have an option to withdraw your data within a month following the end date of the Survey.

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